When you are diagnosed with CRPS/RSD, everything changes. Life begins to shift courses. The pain can leave you feeling isolated to the four walls of your home. And possibly lonely, due to your limitations. Everything that was once normal, slowly is tested.
Getting involved and trying to meet others struggling the same battles (peers) has been found to be a helpful tool in managing this condition. But some patients will find that getting involved with or creating local events are more of their interest. There are many ways to do this. Here are just a few:
Getting involved and trying to meet others struggling the same battles (peers) has been found to be a helpful tool in managing this condition. But some patients will find that getting involved with or creating local events are more of their interest. There are many ways to do this. Here are just a few:
Ways to make a difference
Join the RSDSA Peer-to-Peer Program
RSDSA will match you with one or more people for one-to-one mutual sharing and support.
RSDSA will match you with one or more people for one-to-one mutual sharing and support.
Write a letter to your local state congressman (or woman). We need their support! House Resolution 1154 affirms the importance of the Orphan Drug Act, applauding its lifesaving contributions over its 35-year history, and recognizing the need to continue supporting research and development for rare diseases.
Wear an orange ribbon in Awareness, 24/7/365. Inform others of this rare disease with your voice. Awareness is so important!
